ARPKD

Saturday, September 19th is the Northeast Ohio Walk for PKD.  Please take a minute to read about a cause that is near to my heart.

My son, William, has ARPKD (autosomal recessive polycystic kidney disease).  This is a genetic disease that led to complications after he was born and ultimately shut down his kidneys.  William went on dialysis and was lucky to have a kidney transplant when he was 2 years old.  He needs to take about a dozen medications every day to manage the transplant and everything that goes along with that.

The great news is that William is doing incredibly well now.  He is going to kindergarten and doing all the other things a boy his age does such as sliding down the stairs on his butt, riding the dog like a small horse, and sneaking downstairs early in the morning to eat ice cream for breakfast.

If you’d like to support the PKD foundation’s search for a cure, please consider donating via Team William.  The medical advances being made today are game-changers from tracking the genes behind the disease to advancing transplant care.